So...i just wanted to update everyone on the Cleveland Appointment that we had with Landon yesterday. We went to see Dr. Traboulsi (a Pediatric Strabismus Doctor) and discussed with him if the patch that Landon has been wearing has helped any. ***A little background: Since Landon was diagnosed with Retinoblastoma, his had always been a little bit worse than Brendens. When Dr. Singh found the tumors in their eyes, Landons was much Larger than Brendens in his right eye and 2 days later, he became the youngest baby to have a radiation plaque inserted to treat the fast growing tumor. This meant that they measured the tumor and made a plaque of radioactive material which kills the tumor and placed it behind his eye on the tumor. To do this, they had to cut the muscle on the side of his eye to get it in there. They did this once to each eye to get the tumors under control and gone. Since the muscle was cut, Landons eyes turn and also, because of the placement of that first large tumor, Landons vision in his right eye was BAD. His vision in this eye was 20/200 at our last checkup. Our main goal in this is to get the vision in his bad eye pretty much equal to his good eye (20/30) and then do surgery to turn his eye back (tighten the muscle back up). Well, The good news that we found out yesterday after doing 4 months of patching his eye: Landons vision in his right eye is now 20/ 80. That's awesome. That means that with a little more patching, we'll be able to have the surgery done! He asked us to patch his eye for another 4 months and hopefully, it will make the vision better! Oh I am just so excited about this - I had started to think that this is just how he's going to be and that nothing really would make it better. I cant wait! I also have more great news! A few months ago, we met with the Speech Pathologist at Louisville Schools concerning Brenden and Landons speech. She was impressed but it was through Help Me Grow and I was a little concerned when we had started the program b/c they weren't exactly talking, just pointing and grunting. (What was I thinking???? Now they talk all the time?!) Anyways, by the time they got to see them, the boys had come leaps and bounds with their speech and were in no need of speech therapy. So, the Speech Pathologist that we talked to was so impressed with how much the boys know and how well they do with their Alphabet and Numbers and their other skills that she asked if we would like to place them into the Louisville Preschool Program. Normally, kids are only placed into this program when they need Early Intervention and help with certian skills. In Brenden and Landons case, could be in the program to help out the other kids since according to testing by the school, they're ahead in alot of areas. She said that alot of her preschoolers dont even know what these boys know. Then, she tols us that if we wanted the boys in the preschool through Louisville Schools, that we could be put on a waiting list and maybe they would have an opening and we'd be able to get htem in. She said in most cases, they dont get two openings together and it may not happen until next year some time. They did want to see them at Preschool screening this fall though just to know how far they've come. Well, yesterday I got a call from Caller ID: Louisville Pub (I'm thinking who's calling me from a pub and where is there a Pub in Louisville...... Well, it was Louisville Public Schools and they have two spaces open and they want Brenden and Landon!!! So starting in August, the boys get to go to Preschool! They are more than excited that they get to go to school "like the big kids..." and they're not the happiest that they dont get to ride a bus but mommy has to take them. I think we'll get past that last part but lets hope that they keep loving school and wanting to go. So...that's my good news!
Hi, I'm Amanda. I'm a single mommy, superwoman and "doctor" to my three miracles. My first two miracles came in the form of identical twin boys born at 36 weeks - as seemingly healthy as the could be. They're 5 now but around 3 months old, we found out that they had inherited Retinoblastoma from me (yeap, I'm a cancer survivor too...). That's when I learned that sometimes, what doesn't kill me ultimately makes me stronger. Good thing too becasue 18 months later, I met my third miracle. He's 3 now but before he was born, we found out that he would be born with a CHD called Transposition of the Great Arteries (TGA). After spending about a month in the hospital undergoing not only bedside surgery in the NICU but open heart surgery and spending a few days on ECMO (Heart bypass), you'd never know now what he'd gone through aside from the scars on his chest: his battle wounds...the door to his heart. There's hardly anything you can tell me now that I wouldn't be able to handle; I'm a Mommy23Miracles.